People enjoy their lives but most everyone takes the most important things for granted, like their health, family, God, and spiritual experiences. Yes, I said God because I can only go by what my spirit tells me, as you can, and my spirit knows God aka Yah exists, whoever he might be, and maybe that's a clue as to who we are. But I've digressed from what I am saying.
In 2005 I was diagnosed with Persistently Progressive Relapsing Multiple Sclerosis and I wasn't asymptomatic. I had been diagnosed with optic nerve damage in my right eye long before I had been with MS, which occurred by accident after my son, and I were hit by a semi tractor trailer, and I experienced severe headaches.
I adapted, as I continued to live an okay life, with times of heightened happiness. I ate right, and I exercised because I always loved the feeling of being toned.
Dr. Mark Cascione Said: “Most people living with MS are diagnosed between the ages of 20 and 50”.
I was diagnosed at age 52, and didn’t have it the year before when I had an MRI of my brain after a serious car accident in 2004.
In 2005 I had a single legion in my spinal cord @ C-2. In 2006, I had 40 legions, and in 2007 a new legion appeared, at which time Dr. Cascione diagnosed me with Progressive relapsing MS. He called it Persistently Progressive Relapsing MS.
My symptoms have worsened steadily since 2005, though some may be caused by something other than MS
My first symptom was my eyesight. I had an extreme over night vision loss due to optic nerve damage. My vision range is also a lot smaller than it was. Doctors Clough, Mark Hammer, and James Rush diagnosed me with Optic Nerve Damage
The first plaque imaged on an MRI was in the spine at C-2 which controls the eyesight. For about four years I had optic nerve damage in the right eye, recently in 2014 they found it in the left eye. They said my optic nerves were solid white, and should be pink.
Then like over night I lost my sexuality, and sensation. I started having episodes of sleep walking, and black outs while being very physical. I do things when I sleep walk like walk, clean, carry on conversation. The same is true for when I have blackouts, though I never remember the episodes. I don’t know the dates of onset, but I am giving a partial list of my symptoms. They have steadily appeared throughout the time of 2005 up until now
Over a nine (9) year span I have developed these symptoms
In 2006 my fingers became swollen, I couldn't open some nor close some others. I was put on Prednisone three times, until about a month after my last one they healed.
List of my symptoms
- Weakness (extreme)
- Numbness and Tingling
- Neuropathy with Paresthesia
- Seeing Patterns where there are none
- Feeling of Ice Water dripping on my feet
- Sexual Problems
- Emotional Changes
- Walking (Gait) Difficulties
- Vision Problems
- Lights flashing in eyes (checked for cataracts, I have none)
- Bladder Problems
- Bowel Problems
- Speech Problems
- Problems sleeping and Sleep Walking
- Swallowing Problems
- Extreme Episodes of being cold, with shaking and teeth chattering
- Itching (extreme-always in the same spots)
- Feeling of gnats crawling on my face
- Breathing Problems
- Hearing Problems (people seem to mumble)
- Posture Problems-I use to have perfect posture and now I have poor posture alignment and I have trunk control problems
- Organ Problems-I have kidney failure, heart, and lung problems.
- Balance and Coordination problems-I fall, a lot.
- The thing that bothers me most is the weakness, which is hard to understand until you experience it
I am sure there are more invisible, and silent symptoms I'm unaware of
- On April 8, 2015 I found out I have an ascending aortic artery aneurysm, and a right side thyroid nodule
Types Of MS
These are followed by partial or complete recovery periods (remissions) between attacks that are free of disease progression.
A nearly continuous worsening of their disease from the onset, with no distinct relapses or remissions.
With an initial period of relapsing-remitting disease followed by a steady worsening disease course with or without occasional flare-ups, minor remissions (recoveries) or plateaus.
Is a steady worsening disease from the onset but also have clear acute flare-ups (relapses), with or without recovery. In contrast to relapsing-remitting MS, the periods between relapses are characterized . It’s the rare one 5%